In 1991, Neil Willenson, a native of Mequon, Wisconsin, was 20 years old and a senior at the University of Wisconsin- Madison. He was majoring in TV/Film and, upon graduation, had plans to seek a career as a feature film producer in Hollywood. All that changed, however, when Neil read the headline in his hometown newspaper: "AIDS hysteria in Mequon." A young boy with AIDS named Nile Sandeen was entering kindergarten in the small town of Mequon, and the community was up in arms. Fear and prejudice filled the air. At the center of all this controversy was a five-year-old boy who only wanted to go to school, who only wanted a chance to make friends.
When Neil read this story in his hometown paper, he knew he had to get involved. For the next two years, Neil got to know Nile. He got to know Nile's brother, Sean, and his mother, Dawn Wolff; an entire family affected by AIDS in the center of America's heartland. Neil compared his own life-history in Mequon to Nile's. On the sidewalks, streets and in the schools of Mequon, where Neil had found joy and friendship, Nile had found only isolation and despair. Fear, ignorance and prejudice had turned what had been a heartland for Neil Willenson into a wasteland for Nile Sandeen. Neil was so moved by his experiences with the Wolff family that in 1992, he and friend Brad Elliott produced created and distributed a documentary film on the family entitled, "One More Day - a Family Living with AIDS." This award winning family was broadcast on PBS and shown at schools nationwide.
In 1993, Nile turned seven years old. Like millions of other children, more than anything, he wanted to go to summer camp. He wanted to run; to play in the sun with kids his own age. He wanted to sit around a campfire at the end of a day filled with fun activities and sing silly summer camp songs in the dancing firelight - to eat breakfast in a dining hall ringing with joy and activity.
A Life-Changing Mission
And so in 1993, inspired by Nile Sandeen, Neil Willenson founded Camp Heartland - a summer camp program that accepted both children infected with AIDS and children who were affected by the disease. The camp was equipped with state-of-the-art medical facilities able to handle the special needs of immuno-compromised campers. It was a summer camping program where children living with HIV/AIDS could step out of the shadows of secrecy into the light of openness and honesty - a place where they could have the best week of their lives.
During that first summer, 73 children with AIDS were welcomed to Camp Heartland at a rented campsite in Wisconsin with funds raised by Neil Willenson and a few dozen college students. After five years of renting campsites around the country, Camp Heartland in 1997 purchased its own, permanent home: The Camp Heartland Center in Willow River, Minnesota.
Set amidst 88 wooded acres in Northern Minnesota, with access to three lakes and miles of wilderness trails, the Camp Heartland Center is an extraordinary haven. It is a light in the darkness for children who live every day of their lives in a thickly shadowed world of chronic illness and discrimination.
Camp Heartland - http://tinyurl.com/jpzl6